When a parent or grandparent is diagnosed with Alzheimer’s disease or another form of dementia, it changes the family dynamic, and this includes teenagers. Adolescence is already a time of significant change, and dementia in a loved one can add further layers of complexity to a teen’s life. They might find themselves taking on more responsibilities at home or becoming more involved in caregiving. These shifts can bring about a mix of emotions and thoughts as teenagers navigate these new family circumstances. How you discuss Alzheimer’s with a teen will depend on their age and maturity level. Remember, seeking advice from school counselors, therapists, or pediatricians can provide valuable support during this time.
Understanding How Dementia Impacts Teenagers’ Feelings
It’s important for parents and educators to recognize the wide range of emotions teenagers might experience when someone they love has dementia. These feelings are valid and understanding them is the first step in providing support. Some common emotional responses include:
- Mixed Emotions: Teens may feel both positive and negative feelings about the changes dementia brings. They might appreciate new responsibilities while also resenting the disruption to their lives.
- Increased Family Bonds: Facing dementia as a family can sometimes bring teens closer to their parents as they navigate this challenge together.
- Social Discomfort: Teenagers might feel uneasy about having friends over, worried or embarrassed about their loved one’s behavior due to dementia.
- Reluctance to Discuss: Talking about a loved one’s dementia can be difficult. Teens might be hesitant to share their experiences or feelings with friends or even family members.
- Feelings of Unfairness and Uncertainty: Increased chores, changes in family roles, and the overall uncertainty caused by dementia can lead to teenagers feeling that things are unfair or that their place in the family is shifting.
It’s crucial to emphasize that all these emotions are normal responses to having a family member with dementia. Open and ongoing conversations are key to helping teenagers process these feelings and adjust to the evolving family situation. For guidance on how to address common questions teens might have, resources are available to help parents and educators navigate these discussions effectively.
Resources to Help Teens Learn About Dementia
To better understand dementia and Alzheimer’s, teenagers can benefit from various resources tailored to their age group. These resources can provide knowledge, emotional support, and practical advice.
Books for Teenagers About Alzheimer’s and Dementia
Reading books specifically written for teens can be a helpful way to learn about dementia in an age-appropriate manner. These books can explain how the brain functions and how diseases like Alzheimer’s affect it. Here are some recommended titles:
- The Dementia Diaries: A Novel in Cartoons (Ages 7-14) by Matthew Snyman and Social Innovation Lab, Kent Jessica Kingsley, 2016. This graphic novel uses cartoons to tell a story about dementia, making it accessible for younger teens.
- Trudy (Ages 8-13) by Jessica Lee Anderson Milkweed Publishing, 2005. This novel offers a fictional narrative that helps younger teens understand the emotional impact of dementia.
- The Human Brain: Inside Your Body’s Control Room (Ages 10-14) by Kathleen Simpson National Geographic, 2009. While not solely focused on dementia, this book provides a foundational understanding of brain biology, relevant for understanding neurological conditions.
- Curveball, The Year I Lost My Grip (Age 12+) by Jordan Sonnenblick Scholastic Paperbacks, 2014. This book touches upon themes of change and unexpected life events, which can resonate with teens experiencing family health challenges.
- Pop (Age 12+) by Gordon Korman Blazer and Bray, 2011. This novel addresses themes of identity and family secrets, which can be relevant to teens dealing with changing family dynamics due to illness.
- Neurocomic (Age 16+) by Hana Ros, Matteo Farinella (Illustrator) Nobrow Press, 2014. For older teens interested in a more in-depth understanding, this graphic novel explores the complexities of neuroscience in an engaging format.
Online Resources for Teenagers
The internet offers a wealth of information for teenagers seeking to learn more about dementia and connect with others. Reliable websites and online platforms can provide educational materials, personal stories, and support networks for teens affected by dementia in their families. Searching for reputable organizations focused on Alzheimer’s and dementia is a great starting point for teens seeking online information.
Videos to Watch with Teens to Understand Dementia
Videos can be a particularly engaging way for teenagers to learn about complex topics like dementia. Watching videos together as a family can also open up conversations and provide a shared understanding. Consider exploring video resources that address common questions and concerns teens might have about Alzheimer’s.
Part 1: What Is Alzheimer’s Disease?
This video can clarify the basics of Alzheimer’s, explaining the difference between Alzheimer’s and dementia and how the disease progresses over time. Understanding the facts is crucial for teens to cope with the situation.
Part 2: What Can I Expect and How Can I Deal With It?
This video addresses the practical and emotional challenges teens might face when a family member has Alzheimer’s. It offers tips on communication and connection, making interactions easier for everyone involved.
Part 3: If the Person with Alzheimer’s Lives with Us, What Can I Expect?
For teens living with someone who has Alzheimer’s, this video provides insights into the changes in their relationship and family life. It emphasizes that the disease is the cause of these changes and offers coping strategies.
Part 4: How Can I Help and What’s Out There to Help Me?
This video empowers teens to take positive action. It explores ways young people can support those with Alzheimer’s and their families, highlighting the importance of open communication and peer support. It also points towards resources available for teens themselves.
Conclusion
Learning about dementia can be empowering for teenagers. By utilizing books, online resources, and videos, teens can gain a better understanding of Alzheimer’s and other forms of dementia. These resources not only provide factual information but also offer emotional validation and coping strategies. Encouraging teens to explore these resources and engage in open conversations is vital in supporting them through the challenges of having a loved one with dementia.
